Hello, I’m Sonja Wood. I had in the studio with me my beautiful daughter Missy. I asked her to share with us about a book she has written. She started writing when she was 8 years old. This is the little book she wrote “Missy, An Autobiography’.
I asked her why she wrote this book? Missy replied with “I had a chronic blood disease called Primary Immune Deficiency and I couldn’t find any support material aimed at children to help them understand what this disease was about, how to treat it, how to deal with it on a day to day basis. So I decided to compile a little autobiography of my experience and my day to day life with having Primary Immune Deficiency. I did this to support and hopefully help other children and patients that were facing similar struggles.”
Missy didn’t actually write this book herself, what would happen was when she was lying in bed at the hospital she would tell me her story, her autobiography, and I would write it down. Then when I got home I would type it into the computer and we would then proceeded to do the necessary layout and so on. Missy did the artwork for the book and then we would pop in some photographs. She also did a little illustration and story at the back of the book of the actual Immune Deficiency. She illustrated the book herself when she was eight years old, she then wrote the autobiography aspect of it when she was ten years old. After that, we compiled it into the book. Saying she ‘wrote’ the book actually meant drawing and speaking, and myself as her mother would put it into text format. Missy’s motivation was for supporting other patients with the same illness that she had, yet we have found this book to be a lot more than that as it is encouraging other home educators (Homeschoolers) to write their own little stories and autobiographies. We also hope it encourages parents to put into a published format what their children have brought out from their hearts and minds.
This is a story about a young lady, Missy, aged twelve at the time of writing this book.
Missy suffers from a rare blood disease called Primary Immune Deficiency. This has required her to have replacement therapy of antibodies via intravenous or subcutaneous infusion her whole life.
At the time of printing, this book Missy undergoes daily infusion of antibodies into her abdomen which takes approximately two hours every day.
Not only has Missy suffered from physical health but she also has had immense struggles with learning. Missy was diagnosed with severe dyslexia and dyspraxia amongst a number of other complex learning disorders!
This little book is a miracle in many ways. A child who was given very little hope for learning, or even life, has accomplished writing her own story about the life she lives!